What Happens at an Autism Evaluation and How to Prepare Your Child

What Happens at an Autism Evaluation and How to Prepare Your Child

Booking an autism evaluation for your child can stir up a lot of feelings at once. You might feel relief that you are finally getting answers, worry about what those answers might be, and uncertainty about what will actually happen on the day. All of that is normal.

This guide explains why evaluations happen, what usually takes place during one, what you should bring, how to prepare your child, and what comes next. Knowing what to expect can make the whole experience feel more manageable for you and your child.

Screening and evaluation are not the same thing

It helps to understand the difference between screening and evaluation.

Screening is a short check, often done by your child’s pediatrician during a regular visit. The American Academy of Pediatrics recommends autism-specific screening at the 18-month and 24-month well-child visits, along with general developmental monitoring at every visit. A screening tool might be a questionnaire you fill out. It does not give a diagnosis. It tells the doctor whether a closer look is needed.

An evaluation is that closer look. It is a more detailed process carried out by trained professionals who observe your child, gather information from you, and use standard tools to decide whether your child meets the criteria for autism spectrum disorder. The CDC’s screening page explains this process in more detail.

Why parents seek an evaluation

Parents usually seek an evaluation because they have noticed something. The CDC lists early signs that can be worth discussing with a doctor, such as:

  •     Not responding to their name by about 9 months.
  •     Using few or no gestures, like waving goodbye, by about 12 months.
  •     Not pointing to show you something interesting by about 18 months.
  •     Lining up toys and getting upset when the order is changed.
  •     Repeating words or phrases over and over.
  •     Getting very upset by small changes in routine.

Not every child with autism shows all of these, and some children without autism show a few. That is exactly why an evaluation matters: it looks at the full picture. Our article on early signs of autism in toddlers covers these signs in more depth.

What usually happens during an evaluation

Every provider runs evaluations a little differently, but most include the same main parts.

A conversation with you

The clinician will ask about your child’s development from birth until now. When did they first smile, babble, walk and say words? How do they play? How do they react to changes, noises or new people? What worries you most? Your answers are a big part of the evaluation, because you see your child in everyday life.

Observation and play-based activities

Your child will spend time with the clinician doing activities that look a lot like play. The clinician is watching how your child communicates, interacts, uses toys, responds to their name and handles transitions. For young children, it often feels like a play session.

Standard tools and questionnaires

Clinicians use structured tools that help them compare what they see with established criteria. You may also be asked to fill out questionnaires about your child’s behavior and daily skills.

Feedback

Depending on the provider, you may get initial feedback the same day or at a follow-up appointment. You should receive an explanation of the findings and recommendations for next steps.

You can read more about the process on our Autism Diagnostic Services page and in our article on autism testing and diagnostic services for young children.

What to bring

Gathering a few things ahead of time can make the appointment smoother:

  •     Your child’s insurance card and any referral paperwork.
  •     A list of your main concerns, with examples.
  •     Any notes from your child’s pediatrician, daycare, preschool or therapists.
  •     Results of any earlier screenings or evaluations.
  •     A list of current medications and medical conditions.
  •     Short videos on your phone of behaviors you are worried about, if your child does not show them during the visit.
  •     Snacks, a drink and a favorite comfort item for your child.

How to prepare your child

Children do best when they are rested, fed and know a little about what is coming.

Talk about it simply

Use calm, simple words: “We are going to see a new person who has toys and games. We will play and talk.” Avoid making it sound like a test.

Use pictures

If your child responds well to pictures, show them a photo of the building or create a short picture schedule: car, building, waiting room, playroom, home.

Plan the day around the appointment

Try to schedule the evaluation at a time when your child is usually at their best. Avoid planning other big activities on the same day.

Bring comfort items

A favorite toy, blanket or snack can help your child feel safe in a new place.

How to prepare yourself

It is common to feel anxious before an evaluation. A few things can help:

  •     Write down your questions in advance. It is easy to forget in the moment.
  •     Bring a support person. Another adult can help with your child or take notes.
  •     Be honest. Describe your child as they are on a typical day, including the hard moments. There is no right or wrong answer.
  •     Remember the goal. An evaluation is about understanding your child so they can get the right support.

What happens after the evaluation

If your child receives a diagnosis

A diagnosis can open the door to services that help your child build skills. The CDC notes that behavioral approaches like applied behavior analysis (ABA) have the most evidence for treating symptoms of autism. Your clinician may recommend ABA therapy, speech therapy, occupational therapy or a combination. Our ABA therapy services and speech therapy pages explain what AFL offers.

If your child does not receive a diagnosis

You will still get useful information about your child’s strengths and needs. The clinician may recommend other services, monitoring over time, or a follow-up evaluation later.

Either way

Ask for a written report. It can help you share information with your pediatrician, school and therapists.

Talking to your child about the evaluation afterward

Children notice when adults are worried. After the appointment, keep things simple and positive. You might say, “You played with lots of new toys today. Thank you for being so brave.” If your child is older and asks questions later, you can explain that some people’s brains work in different ways, and that the visit helps grown-ups learn how to help them learn and feel good. Keep the focus on support, not on something being “wrong.”

Questions to ask at the end

  •     What did you see today that led to your conclusion?
  •     What are my child’s strengths?
  •     What services do you recommend, and how soon should we start?
  •     Will I receive a written report, and when?
  •     Who can I call if I have questions later?

Talk to Our Greenwood Team

If you are in Greenwood or the south side of Indianapolis and have questions about autism testing, our Greenwood clinic can talk you through the next steps.

Adapt For Life – Greenwood

  •     Address: 745 U.S. Hwy 31 N Suite 745, Greenwood, IN 46142
  •     Phone: +1 (317) 597-5807
  •     Email: greenwood@aflaba.com
  •     Location page: ABA therapy in Greenwood
  •     Main helpline: +1 (502) 965-1116

Ready to take the next step? Get started today and our team will walk you through intake, insurance and scheduling.